Thanks Mom

Dear Mom,

It's Mother's Day. The day that only exists because you are my mom. Not to be too self-important but if it wasn't for the children this would be just another Sunday. You would probably be doing yard work or groceries.

Mom in the elevator

Dear Mom in the Elevator,

I'm sorry. I apologize for leaving so quickly. I saw you and your husband in the elevator at Children's. You were wearing the badge of the NICU. You had hit the elevator for the respite floor. You looked so spent. So wiped. So scared.

As I left with Boo for her cardiology appointment I turned and said, It gets easier.

Then I left.

What happens...

What happens when you begin to lose faith? In perspective we haven't been on this journey long. Five years is nothing when compared to other children's battles. Having a child undiagnosed with unexplained ailments compared being a parent whose child is fighting a life threatening illness is insignificant in comparison.

Dear Disney Pop Tarts

Dear Disney Pop Tarts, ahem, Stars,

I like you. I honestly do. I think you are cute. I think you have talent. I think you are doing a great job. There is nothing like watching your previously non-verbal daughter belt out the chorus of Come & Get It by the former princess of Waverly Place. It's even nicer when your older daughter learns about dyslexia because you are willing to be outspoken about how you succeed with a learning disabilty.

But when you 10-year old who thinks Selena Gomez is the BEST SINGER EVER quickly followed by Zendaya, Bella Thorne and the rest of the Disney pop stars asks to buy a poster of her favorite singers, it is a tad alarming.

No interest

I have no interest in being a person who wallows. I do not want to be a blog that focuses on one theme. I think of this blog as my therapy. If I am lucky it is your therapy too because you realize you are not alone.

Whether your child is healthy and ornery like Abby or challenging like Boo or your house has a crazy puppy who is equal parts loving and destroying your house. I want all to feel welcome and to feel a connection.

Therapy with love

Every month we have "workshops" at Boo's school. It is a time when we get to be at her school for an afternoon and observe her various programs. All of her therapists are there, along with the head of her program. We find it a very rewarding, if sometimes heartbreaking, experience.

It is an opportunity for us to ask questions. To provide input on what is happening at home and seek advice. We are able to see the techniques corrected by the head of the program and adapted in ways to promote Boo's best chance for success.