Boo has had to undergo neurological/psychiatric testing over the past two weeks. There hasn't been any issues, other than her turning five. In our state (for insurance purposes, I believe) once you turn the ripe old age of five you are no longer allowed to be undiagnosed and/or globally delayed.
Boo had to go twice, for two hours each day, to meet with a psychologist for a battery of tests. (I think battery is a strong word, she didn't hurt Boo). The tests varied from intelligence/cognitive testing to behavioral/autism to play skills. Part of me wanted Boo to bomb the testing, securing her services. The good mom in me wanted her to excel.
Typical Boo she did a little of both and managed to frustrate the doctor. I wish I could have Kristi's artistic talent to demonstrate the following (I tried, I failed, I didn't want to hurt your eyes):
Doctor: Boo stack the blocks like this (imagine, two next to each other and one on top)
Boo: (hands the doctor the blocks after banging them for a minute)
Doctor: Can Boo climb onto and out of an adult chair?
Boo: Moves said chair next to exam table, proceeds to climb on top of chair, to table, to window sill in an attempt to get out of the room. We happen to be on the 10th floor and very thankful the windows don't open.
I'm impressed that Boo realized she had to do something with both the blocks and the chair. The doctor is distressed that she cannot follow direction.
At the end of the two days the doctor asked us if we had any questions. I ask her how she feels Boo did. She had previously thrown out words: autism, PPD-NOS, mentally disabled, intellectually disabled, ADHD and a bunch of other terms. Her response:
I have to score the tests.
Hm...now those that know me know that I tend not to be brushed off. I (politely, I swear) reminded the woman that she was an experienced professional who must have some instinct to how Boo had tested.
After a moment or two she told us that she honestly didn't know. That she wanted to show the test results and video to not only Boo's neurologist (whom I adore and trust) along with other colleagues. How Boo performed was baffling:
She shows signs of Autism: Will not look the doctor in the eye.
She shows signs that a child with Autism wont: She told the doctor to "look" and sought her attention.
Autism: Hand flapping, quickly distracted, would not follow directions, toe walking
Not: Social, engaging with materials, attempts to please, would put heals down when prompted by cue
Autism: lack of safety awareness
Not: asked for help when trying to get down off the exam table
Intellectually disabled: Cannot copy a "t" on the paper
Not intellectually disabled: can hold a pencil in the correct grasp
ID: Cannot follow a two-step direction
Not: Knew she needed a pencil to draw on paper
ID: Poor motor planning
Not: Pushed chair to get to top of exam table
The examples go on and on. In the end the doctor said at this point Boo is a Medical Enigma.
Where have I heard that before?
She will convene a team (about damn time) to look over everything. She agrees (as do neurology and genetics) that whatever is going on is neurological in origin. In the end it doesn't really matter what "term" they give Boo. I think Bridgetitis is a lovely term. We will continue to advocate, get therapies that work and love her the same with or without a medical diagnosis.
At five years old, she remains undiagnosed and we are still okay with that.