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Thursday, July 24, 2014

TBT--The Perfect Day

Welcome to my version of Throw-Back Thursday, blog style. I'm taking Thursdays to revisit some older posts.  I hope you enjoy the trip back in time.

(Originally published 24-JUL-2012)

Yesterday I took the day off. Completely off. No work, no housework, nothing but spending the day with Abby. 

First we dropped Boo off at her school. Then....

We went to Dunkin Donuts and discovered the joy of the new Oreo donut. We went shopping. When offered the choice between doing our nails or going to a playground she chose the playground. We went to lunch, her choice where she could make our own pizza.

I was told I was the best mom ever (I am writing it down to remember when she is 16). I was told that we 'have the most fun together' (I am saving this for the college years). 

Then I was told something was missing. I'm biting my tongue to not tell her to be selfish when she says:

The only thing missing was Boo.


So we went to get Boo from school and finished the perfect day.


Wednesday, July 23, 2014

Challenges related to a disability

Last week I was late and well, I'm still technically a week behind the postings. This week's prompt in the Summer Blog Hop Challenge: Talking Raw, Talking Real: Challenges Related to a Disability. 

I kind of wish Boo could write this post. Or Abby. I bet they would say, Challenge? What Challenge?

The truth is, though, loving a child with a disability doesn't mean you do not see their challenges. They are pretty out there. If you see Boo you might say her challenge is communication. Or motor planning (then you didn't see her climb on the counter and remove all knives from the strainer to get her Sophia cup). 


As I am unsure how Boo would perceive her challenge, I will explain how being a parent of a child with a disability presents a unique situation. 

Tuesday, July 22, 2014

I need crowd control

Recently Abby started swim lessons. Yes, I know we are a tad late to getting her skills up. Especially as we are surrounded by water. But well, we've been busy. As I was sitting at her lesson recently I realized that just across the pool was a windowed room that gave you a view of the pool.

The room was filled with stationary bikes. In a moment of AHA I thought why am I sitting here when I could be exercising. No I wasn't hit on the head. 

Monday, July 21, 2014

My Challenge: Jessica



I introduced you to my friend "J" about two years ago. She was Boo's Yogi before life got too crazy to keep up with it. I am happy to officially introduce Jessica, the mother of four beautiful daughters. She practices and teaches Yoga for the Special Child. In her "spare" time she organizes The South Shore Buddy Walk  and Co-Founded a non-profit Heart Beats for Down Syndrome

Her challenge?

Thursday, July 17, 2014

TBT--Freeloading

Welcome to Throw Back Thursday, the Blog edition. A walk back in time to before any one read Undiagnosed but Okay. I hope you enjoy the trip!

(Originally posted 12-JUL-2012)

Our friends have a house at the beach. Every year we go and freeload for a couple of days. Abby is always excited to go and so am I. Who doesn't love a beach house? Cocktails, sun, sand, surf and a clean bathroom you don't have to share with strangers.

Boo would rather be in occupational therapy. She hates the beach! The past couple of years have been torture for her. Last year was probably the aha moment where I realized that Boo not only had sensory issues but that they could and would be paralyzing.

This year was much easier for Boo. During low tide, as far from the water as possible. She stood on the hard-pack sand!


All Abby wanted to do was surf. Even crazy puppy got in on the action (Boo was no where near the water, preferring to stay at a safe distance!). As the tide came in, Boo felt that it was safer back at the house, so she stole Allie's board...

But Boo spent the day at the beach and was content to go home and relax with her pup.  We are going back this weekend. We hope to get Boo a little closer to the water!




Wednesday, July 16, 2014

A letter to myself

I'm semi-participating in a Summer Blog Hop Challenge meant to show others how the life with a disability, or with a child who has a disability, is a journey. A never ending one, for sure. But a journey filled with triumphs and some tears. Of course per my usual stick-to-break-the-rules reputation instead of starting in week 1 it is now week 3. So today we are starting the journey half-way through with a letter to myself. Even though that was week 2's prompt